People want to be seen, but people with Alzheimer’s, dementia or any disease, want to be seen too … but not for their disease … for the person they are beneath the symptoms of their affliction.
Because of my direct involvement as my Dad’s primary representative, contact, liaison, and advocate, I am discovering the labels “Combative and aggressive” are attached especially attached to people with Alzheimer’s and dementia … but isn’t this wrong thinking … especially in the minds who are supposed to be the healthcare professionals? Isn’t it the diseases themselves that rob people not only of their ability to remember, but also of being able to manage their emotional responses to what they perceive as a threat … or even their frustration and anger in their cognitively-clear moments?
An early morning call yesterday revealed the consequences Dad has had to pay for the medication used to “incapacitate” him … that is preventing him from the simple act of getting out of bed on his own … the call informing us he had broken his hip or leg … which led to an all day ordeal that finally resulted in surgery last night and the words “combative” being applied to his state this morning.
Shocked, stunned, and astounded are words that continue to reverberate throughout my being as I journey this tortuous path with my Dad … but then, when I pull back with time to reflect, the state of being shocked, stunned, and astounded are replaced with the knowledge I already know … in a world and healthcare system still driven by dollars first rather than respect for life, I should not be surprised by any of what I see and hear plus observe what Dad is experiencing.
His warrior spirit fights with all its might and though I do not know how long his war with his humanity will last, I pray for the means to continue to serve as his support and for the “Connecting the Dots … with The RESPECT PRINCIPLE” work that will not just create an income source for me, but will help positively change the views we have about each other … so we can be more compassionate … and innovative in finding the best ways to help each other as we each face our own unique challenges in this life … respectfully.
February 27, 2015
KAITLIN A. TREPANIER
The RESPECT SPECIALIST & PEACEMAKER … Freeing “Potential” with Education, Entertainment, and Inspiration!
Click on the link below starting Tuesday, January 27, 2015 to DISCOVER … and SUPPORT … the INDIEGOGO crowd funding campaign for the global initiative, Connecting the Dots … with The RESPECT PRINCIPLE … because every child … every person … should know, by their own experience, they are valued … RESPECTED.
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